Manager, Patient Advocacy

Who We Are

BioMarin is a global biotechnology company that relentlessly pursues bold science to translate genetic discoveries into new medicines that advance the future of human health.

Since our founding in 1997, we have applied our scientific expertise in understanding the underlying causes of genetic conditions to create transformative medicines, using a number of treatment modalities.

Using our unparalleled expertise in genetics and molecular biology, we develop medicines for patients with significant unmet medical need. We enlist the best of the best – people with the right technical expertise and a relentless drive to solve real problems – and create an environment that empowers our teams to pursue bold, innovative science. With this distinctive approach to drug discovery, we've produced a diverse pipeline of commercial, clinical and preclinical candidates that have well-understood biology and provide an opportunity to be first-to-market or offer a substantial benefit over existing therapeutic options.

About Corporate Groups
It takes a village, and at BioMarin our corporate groups are the people behind our success. Groups such as IT, Finance, Legal, Global Compliance & Ethics, and our People Team provide foundational support of all areas of operation at BioMarin.

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Note: This description is not intended to be all-inclusive, or a limitation of the duties of the position. It is intended to describe the general nature of the job that may include other duties as assumed or assigned.

Equal Opportunity Employer/Veterans/Disabled

An Equal Opportunity Employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, or protected veteran status and will not be discriminated against on the basis of disability.

Summary Description
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Responsible for the development and implementation of advocacy objectives to support patients in Argentina, Chile, Uruguay & Paraguay. As primary point of contact manages the relationships with the patient advocacy groups and ensure the perspective of the community is reflected in our programs. Provide representation to the patient communities on behalf of BioMarin and in support of business objectives.

Responsibilities
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• Collaborate with patient advocacy groups (PAGs) on disease awareness and disease state educational materials
• Support PAGs' development and capability building
• Support evidence-based advocacy in Access efforts (e.g. supporting data generation by PAGs to highlight the unmet patient need)
• Support PAGs in their advocacy efforts with governments and rare disease policy shaping
• Support PAGs in their efforts to better collaborate with clinical centers
• (including support in recruitment of clinical trials)
• Co-creating the patient - centric resources to support patients and families
• Organize BioMarin led PAG events, and elevate patient stories
• Facilitate regional collaboration between PAGs as appropriate
• Gather patient insights to better address patient and business needs
• Ensure deep understanding of PAG mindset, mission, and objectives to ensure professionalization and capacity building.
• Establish and maintain long-term relationships with PAGs and address gaps or misunderstandings toward productive collaboration.
• Provide systems support including guidance on applications such as E-grants, etc.
• Support the PSP via internal collaboration with PSP lead.
• Develop models and materials to support disease state and other patient community educational materials.
• Provide visibility to BioMarin management on PAGs status, initiatives and projects.
• Manage and guarantee adherence to corporate policies and the Code of Conduct.
• Plan and execute donations according to the allocated budget.
• Collaborate with other internal areas to support reimbursement programs.
• Evaluate and adjust the strategy on each territory to solve local problems.
• Manage special cases with Associations - doctors
• Manage end follow-up activities for patients.

SCOPE

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Through the relationship with PAGs & PSP, it guarantees that the activities developed for them will align with the compliance and Code of Conduct, to preserve the integrity and image of BioMarin.

Contribute together with Sales OP, Marketing, Financial and Medical areas to an appropriate support on the disease journey of patients.

Manage the budget for donations.

EDUCATION

State both the minimum and the preferred educational attainment (or equivalent experience), and describe essential and desired subject matter, certifications, special training, etc.

Bachelor's degree in administration, communication, and related health areas.

English proficiency is required.

Experience
State both the minimum and the preferred number of years of relevant experience and describe the essential functions of the job.

• A minimum of 3 years of experience in pharmaceutical or healthcare. In-house experience at a pharmaceutical/biotechnology organization strongly preferred.
• Demonstrated effectiveness operating in complex organizational and regulatory environments.
• Excellent written, oral, and presentation skills.
• Proven ability to work with all levels of management and the general workforce.
• Strong problem-solving skills.
• Demonstrated ability to partner effectively with others in addressing complex issues.
• Strong persuasive skills and sound business judgment.
• Motivated, self-starter with ability to appropriately prioritize issues and allocate resources and be capable of working alone and making sound decisions.
• Experience with regional travel and addressing specific needs of PAGs via in-person engagements