Manager, Patient Advocacy

Manager, Patient Advocacy - Southern Cone 4 days ago Be among the first 25 applicants Summary Description Responsible for the development and implementation of advocacy objectives to support patients in Argentina, Chile, Uruguay & Paraguay. As primary point of contact manages the relationships with the patient advocacy groups and ensures the perspective of the community is reflected in our programs. Provide representation to the patient communities on behalf of BioMarin and in support of business objectives. Responsibilities Collaborate with patient advocacy groups (PAGs) on disease awareness and disease state educational materials Support PAGs’ development and capability building Support evidence‑based advocacy in Access efforts (e.g., supporting data generation by PAGs to highlight unmet patient need) Support PAGs in their advocacy efforts with governments and rare disease policy shaping Support PAGs in their efforts to better collaborate with clinical centers (including support in recruitment of clinical trials) Co‑creating the patient‑centric resources to support patients and families Organize BioMarin‑led PAG events, and elevate patient stories Facilitate regional collaboration between PAGs as appropriate Gather patient insights to better address patient and business needs Ensure deep understanding of PAG mindset, mission, and objectives to ensure professionalization and capacity building Establish and maintain long‑term relationships with PAGs and address gaps or misunderstandings toward productive collaboration Provide systems support including guidance on applications such as E‑grants, etc. Support the PSP via internal collaboration with PSP lead Develop models and materials to support disease state and other patient community educational materials Provide visibility to BioMarin management on PAGs status, initiatives and projects Manage and guarantee adherence to corporate policies and the Code of Conduct Plan and execute donations according to the allocated budget Collaborate with other internal areas to support reimbursement programs Evaluate and adjust the strategy in each territory to solve local problems Manage special cases with associations and doctors Manage end‑follow‑up activities for patients Scope Through the relationship with PAGs & PSP, it guarantees that the activities developed for them will align with compliance and the Code of Conduct, to preserve the integrity and image of BioMarin. Contribute together with Sales, Marketing, Finance, and Medical areas to appropriate support on the disease journey of patients. Manage the budget for donations. Education Bachelor’s degree in administration, communication, and related health areas. English proficiency is required. Experience A minimum of 3 years of experience in pharmaceutical or healthcare. In‑house experience at a pharmaceutical/biotechnology organization strongly preferred Demonstrated effectiveness operating in complex organizational and regulatory environments Excellent written, oral, and presentation skills Proven ability to work with all levels of management and the general workforce Strong problem‑solving skills Demonstrated ability to partner effectively with others in addressing complex issues Strong persuasive skills and sound business judgment Motivated, self‑starter with ability to appropriately prioritize issues and allocate resources, and capable of working alone and making sound decisions Experience with regional travel and addressing specific needs of PAGs via in‑person engagements An Equal Opportunity Employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, or disability. #J-18808-Ljbffr